"I think anyone that can do it should give it serious consideration, you are literally saving a life."
My nephew Louis was diagnosed with chronic kidney failure when he was 26. He went from thinking he was completely healthy to being told his kidneys were working at 9% function so would need to begin dialysis and be put on the kidney transplant waiting list.
Without any hesitation, his mum, myself, and our other older sister said we’d start the testing process as soon as possible to see if we could donate a kidney to him. The hope was he could get a transplant before he needed to start dialysis, which would make his life a lot easier and his body would respond better to the transplant.
The test results showed that we were all matches for him. Louis’s mum was front of the queue to donate, but the next few tests showed her kidney function wasn’t high enough for her to safely donate. I’m the youngest sibling, so I said I’d go next. Luckily, the tests showed I had super kidney function! So we cracked on with the more detailed testing as quickly as we could.
Everything came back saying I was healthy enough to donate, and a transplant date was scheduled. Things definitely got real from there! It felt like quite a shock after so long in the testing phase. I’m a very positive, pragmatic person, so just wanted to get on with it and help my nephew before he was forced to start dialysis treatment.
The operations went absolutely fine and Louis’s new kidney started working almost immediately. I needed a couple of days to recover – obviously Louis’s body felt great as it got a newly working kidney, but I was the opposite, having felt so well going into the surgery the first 24 hours were quite challenging with sickness. By day two I was able to get out of bed and see him for the first time. The difference in him was incredible and made the whole process immediately worth it.
That first week or two after getting home from the hospital was definitely tricky. I’m not used to feeling poorly, so I wasn’t a very good patient! But after the first 10 days I was doing well and getting back to work and more normal life. After six weeks I was 90% back to normal and now, 18 months on I wouldn’t know any difference from life with two kidneys.
By pure chance I had a neighbour who happened to donate a kidney six months before me. They became my support and really helped me through that initial recovery period.
A few months after the donation, we had a big family celebration for Easter. Louis was himself again for the first time in a while. He had been feeling poorly for some time so we had forgotten what he was like when he was at his best. I had my nephew back, and my sister had her son back. We just couldn’t stop talking all day long!
My living donation was relatively straightforward, and we’ve had an incredible outcome. It’s an honour I was able to pay it forwards like that. When I tell people I’m a living kidney donor, they always say how amazing it is to donate. I appreciate what they mean, but it’s also very doable. I think anyone that can do it should give it serious consideration, you are literally saving a life. My nephew gets to lead an almost normal life post transplant which is all we could wish for.
"It is actually quite a privilege to be able to have an impact on someone’s quality of life."
Read"It's made zero difference to my health, but it's made the world of difference to my dad's health."
Read"The difference in him was so obvious. He woke up at 2:00am and said how everything seemed so bright and clear for the first time in years."
ReadWhether you’ve already decided to donate a kidney, or you are interested in finding out more about the process and what it involves, we’re here to answer any questions you might have.