Cheryl's Story - Make Your Mark

Cheryl, now 45, was nearly two years old before doctors discovered she’d been born with poor kidney function. X-rays showed that both kidneys were on her right side, were too small, and weren’t working properly. She also had very high levels of urea in her blood.

Living kidney recipient Cheryl as a child

This helped to explain the many health issues she’d endured as a baby.

Kathleen, Cheryl’s mother, kept a detailed diary throughout her daughter’s early years, documenting the ups and downs of her kidney treatment journey and her eventual life-saving transplant.

“Her appetite was poor, she would become distressed if encouraged to put weight on her legs and she didn’t like lying on her tummy,” says Kathleen, who also recalls Cheryl’s colouring as being “yellowish”.

Unable to sit up unsupported until she was at least nine months old, Cheryl’s milk teeth developed more slowly than normal, while a lack of calcium in her bones caused renal rickets.

As time went on, Cheryl’s kidney function continued to deteriorate so, shortly before her fourth birthday, she began continuous ambulatory peritoneal dialysis (CAPD) via a permanent cannula fitted in her stomach.

“Cheryl’s bedroom looked a bit like a hospital room with all the equipment and supplies needed for her dialysis,” says Kathleen, a retired NHS worker. “But she was such a happy little girl – always smiling.”

With a kidney transplant now the only long-term option, Kathleen didn’t have to think twice about donating one of hers.

After tests confirmed she was a suitable donor, the transplant finally went ahead on 1 November 1983, at what is now the Royal Hospital for Children in Glasgow.

Living kidney recipient Cheryl as a young child in hospital

The operation was a success and just over three weeks later, Cheryl was allowed home – much to the delight of her older sister, Katrina.

Despite everything she went through, Cheryl believes the challenges she faced as a little girl may have benefited her in the long run.

“I think it’s made me a stronger person and I can take on what life throws at me,” she says. “I’ve been lucky.”

Four decades on, Kathleen still marvels at Cheryl’s sunny, uncomplaining outlook.

“I’m so proud of the way she’s dealt with everything,” says Kathleen. “When I looked back at my diaries and read everything she’s been through, it made me realise how ill she actually was. But we just got on with things and, through all that, Cheryl built up an amazing resilience.”

“I think about how lucky we are to have had all this time,” says Cheryl, a supermarket customer services assistant in Edinburgh. “Mum’s kidney has lasted so long and I’ll always be really grateful.”

Kathleen adds, “Our bond is incredible. She’ll always be my wee girl, even though she is now in her 40s.”

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