"I found the process infinitely more rewarding than anything I have sacrificed."
Donating a kidney to a stranger was something that had been in my mind for a long time. I had been thinking about it for about a decade, at least.
I first heard about altruistic kidney donation on a podcast. One of the hosts explained about the ‘pairing scheme’, where one person could ‘unlock’ a chain of donations and up to three people’s lives could be saved by that one person’s decision. I found it absolutely fascinating! It lodged in my brain and I found myself always coming back to it.
Finally, as I was coming to the end of my career and thinking about what I could do to mark my retirement, the first thing that came to mind was – “I’ve always considered donating a kidney. Perhaps now is the time to look into it!” I contacted my local transplant unit in Bristol and things moved forward from there. I’ve always been a healthy person. I’ve never had any major illness so I wasn’t expecting the testing process to turn up anything untoward but it’s still nice to know everything is working well!
I told my family what I was planning on doing and they were quite taken by surprise at first, but after I explained everything they came around pretty quickly. They understood the benefits it could offer someone who needed my second kidney far more than I did. They quickly got behind me once they realised I had done my research and had answers to all their questions, like the risks involved and what to expect during the recovery period. I had done a lot of reading on the subject beforehand so felt really prepared (I only wish the www.donateakidney.co.uk was around when I was donating and I’m sure I would have read that too!).
It was quite a long process, longer than I initially expected. It was over a year before all the tests were done and I was told I could donate a kidney. I had just missed one of the matching runs that they do to match non-directed donors to people in need of a kidney, and had to wait a few months for the next one. But there were no big issues along the way, just pushing through the process.
I had never been an inpatient at a hospital before, other than during my first pregnancy, so I didn’t know what to expect during the operation day. But everything was explained really clearly every step of the way. To be honest I didn’t feel nervous at all. I think my husband John was more nervous than I was!
I was taken down to surgery quite quickly and everything went really smoothly. I don’t remember too much about waking up from surgery, but all the healthcare team were great at being there for me and offering pain relief in case I needed it.
I was quite uncomfortable for the first few days after the surgery, but nowhere near as bad as I had worried I’d be. Two weeks after the operation I felt absolutely fine again. Two months on, I was feeling good enough in myself to get back to exercise classes and hardly felt the difference in myself. I couldn’t suggest it’s the same for absolutely everybody who donates a kidney, but personally it wasn’t anywhere near as bad as I expected. My husband said the same thing – he had expected to wait on me hand and foot for weeks, but I was up and doing the cooking just a few days after my operation!
Everybody is different, but I found the process infinitely more rewarding than anything I have sacrificed. I have absolutely no consequences in my day-to-day life as a result of donating a kidney – apart from going up hills a little slower than before, but I’m hoping I can improve on that! I only wish more people knew that donating a kidney while alive is something you’re able to do as I still talk to people who don’t even know it’s possible.
After my donation, I still wanted to do more for the cause and help raise awareness. I did a fundraiser for Kidney Research UK, and they mentioned the UK Living Kidney Donation Buddy Support Service. It was something I really wanted to get involved in! I know that it would have been nice to have had someone to talk to during my own donation journey who I could talk and ask questions to. I’ve formally retired now, and if I’m able to help someone understand what’s involved in the donation process and share my experience, that’d be great.
Judith is also a Buddy in the UK Living Kidney Donation Buddy Support Service. Visit our webpage on the service if you would like to speak to her, or someone else who has experience in living kidney donation.
Whether you’ve already decided to donate a kidney, or you are interested in finding out more about the process and what it involves, we’re here to answer any questions you might have.